Posted in Beauty, Health, Parkinson's Disease

Parkinson’s Hack #4: Makeup

One of the things that has definitely kept depression at bay for me is makeup. Not only does it keep me from scaring the masses, it makes me feel alive and better all around. But, like everything else, when you have Parkinson’s, things need to be adjusted. Here’s a few little tidbits that have made the experience more enjoyable and easier.

1. Invest in self-adhesive eyeshadow shields. These, for me, are a game changer. By using them under the eyes, you reduce fallout of shadow onto your cheeks and even hands. By using them on top and bottom of your eyes, you can create a streamlined eye look with crisp, clear lines. Also, if you’re having a shaky day, you needn’t worry about whether one side is darker, higher, etc than the other or worry about getting the shadow everywhere but on your lids!

2. Switch from a pen/pencil eyeliner to a gel. Those little gels in their little bitty pots bring me such joy! Although it’s applied with a small brush, the line can be gone over to make it bigger, longer, thicker or even thinner. There’s less chance of poking yourself in the eye (which I’ve done quite often). It is also much easier to accomplish more dramatic eye looks without the fuss.

3. Multi-task! Using one product with multiple functions is a time-saver with or without PD. Highlighters that double as a primer for example, are a great way to do double duty.

4. Don’t be afraid of color. Especially if you are suffering from depression, now is the perfect time to play with color. Remember how much fun makeup can be! Check out some YouTube gurus and try something new. It does wonders to lift your spirits. Change your look to fit your mood.

5. Rethink your makeup. Although no one quite knows why, PD can change your skin. Be it tone, oil, dryness, etc. changes happen. Do you need a matte foundation? More concealer? Take a look in your makeup bag and do something new.

6. Maybe some things need to go. Okay, maybe we can’t do false eyelashes anymore. That’s ok. Mascaras have come a long way! Try one with a thicker brush to eliminate oops moments. If you have to avoid your lower lashes, than do that. There aren’t rules here! It’s makeup. We may not be able to recreate those fab Instagram looks, but, hey, we work with what God gave us!

7. Moisturize! Then, moisturize some more. I know that I had to switch primers because the one I used for so long started to dry me out and wasn’t worth the pore minimizing effects. Once I went to a hydrating primer, problem solved.

8. Do it for you! It’s about doing something for you. To benefit you, to make you feel better, to help you see some sunshine everyday. It shouldn’t be a have to. Make it a want to. It may, as it does for me, motivate you to do more things. The better you feel, the more you are capable of. Don’t give up.

Posted in Parkinson's Disease

Parkinson’s Life Hack #2

This is more of a life hack for anybody with any chronic illness. Do more when you can. On the days I’m feeling upbeat, energetic, and generally well- I try to do much more to compensate for the days when I really can’t do anything at all.

That includes cooking extra meals to be frozen and used at a later date. Extra cleaning no matter what that may be. Extra writing, and any other general extra tasks.

This may sound really simplistic and like General common sense. However, when you have a chronic illness we can be tempted to slack on our feeling good days. When you’re feeling good sometimes all you want to do is enjoy it.

Well some days that may be okay, when you have a family you just can’t. So on days like that I promised myself I will do everything I can and that way when there are days I can’t do anything I don’t feel quite as bad about myself. It’s kind of like a self-esteem booster.

Posted in Health, Parkinson's Disease

Parkinson’s Skin Issues

Next to fatigue, this PD symptom really stinks. The best way that I can describe it is creepy-crawly. It’s almost as if you sat down on an ant hill. Until today, I honestly thought it had something to do with allergies or something similar.
I went to the PD forum on APA.org as I often do and looked it up. It even has a funky name. ‘Formication’. Those of us in the forum made jokes about how it’s one letter off from ‘fornication’. Two ENTIRELY different definitions! At least we can laugh about it, right? It seemed that most of us with young onset PD have the most trouble with it.
Being that I never expected it to be related to PD, I’ve tried everything- new bath items, moisturizers, pills- you name it. Apparently, Cetaphil is the go to in the group for moisturizing. Regardless, my back, arms, and legs have been in a constant state of ‘itchy’ for weeks. It’s quite unnerving.
No one wants to be out in public looking for a wall corner to scratch their back on! Plus, the hubs is tired of me saying, ‘Can you scratch my back? I can’t reach this spot.’
I really do try not to blame everything that occurs in my messed up body to PD. I try not to be a complainer. But, this symptom is simply awful. So, I will offer it up in prayer and continue to search for remedies. I do stay well hydrated and don’t take overly hot showers. The forum is awesome for looking up new, obscure symptoms. I’m jealous that many of the folks there have really good neurologists. Mine isn’t great, but he’s the only one in close proximity.
I will try the Cetaphil and see if it helps.

Posted in Parkinson's Disease

Another One of Those Days….

I should’ve known when I tried, unsuccessfully, to sleep last night, that it was going to be a rough day. Monday stunk, too. Nothing went right. These are the types of weeks that cause folks with chronic illnesses to fall into depression. I can see how it easily happens.

I’m grateful that there is a super quick, zero fuss dinner in the freezer ready to go. With the amount of discomfort I’m in, I don’t see how I’d have concentrated on meal prep. It’s been raining on & off for several days. Today’s radar shows possibly heavy storms with or without hail. Yippee. If you are a chronic pain sufferer, you know what that means for you.

On Friday, I’d tried ordering a delivery from Giant Eagle. I’d never done that before. They have a Curbside pick up that’s awesome, but, being so rural, I doubted that they’d come here. Regardless, I placed the order & was stunned that a wonderful young lady delivered it. At least that was a bright spot today. Well, that and the fact that the dog has been an angel so far.

My youngest son is here with me and always willing to help, but, I have zero motivation to even try. He has an event tonight for local youth &, as I watch the clock click away, I know I’ll have to drive within a few hours. So, I’m cutting myself some slack, trying not to look around at the housework that needs done. I’ll do my best & that will have to be good enough for today. Holding out hope that tomorrow will be better, I’ll have to put off that which isn’t necessary.

At least everyone has clean clothes & there will be dinner.

Posted in Home, Parkinson's Disease

Parkinson’s Life Hacks #1

I hate to do linens. It’s just one of those little things in life that irks the snot out of me. When you have any sort of disability, from Parkinson’s to arthritis, housework can become ten times harder. I also hate asking for help. I don’t want to take advantage of my disability nor do I want to rely on others to do things for me (If I can help it, that is).

So, changing bed linens can be exasperating for me. My main complaint is the fitted sheet. Grrr! I could never seem to hook it properly or figure out which part was the top/bottom. Being short doesn’t help either. I have to be a contortionist to work out the sides! So, as I sat in the middle of the bed, frustrated and ready to cry, I decided to come up with a way to remember which side was up and such.

Trying to use my anger constructively, I spied a bottle of nail polish on a bedside table. AHA! After having figured out for 100% certain that the sheet was on properly, I marked the top, left hand corner with a slash of nail polish, underneath the elastic. The slash isn’t so big that one could see it if they weren’t looking for it.

It took about 20 minutes off my time. It was an easy fix to a big issue and made this aspect of housework a little easier.

Posted in Faith, Health, Parkinson's Disease

Painting With Parkinson’s

I’ll be honest. There was a time here recently that I was giving up. My body wasn’t cooperating. My mind was following its lead. I was depressed and fed up. Nothing was making me happy. The things I wanted to do I couldn’t. I certainly didn’t want to do nothing. I started letting my mind wander to all the things I have never accomplished. Basically, I had a full-on pity party.

Then, I got a text from my mom, showing me an embroidery piece she’d done. Then, another. Mom, with her more advanced Parkinson’s was sewing! It wasn’t like I forced myself to tell her it was nice. It WAS nice. She did a great job. I got me thinking.

When my husband & son decided to pop into Hobby Lobby, I went to. I went up and down aisles. Shaking my head and doubting myself, I ended up in the painting aisle. Now, I am not artistic. I’m not even kind of crafty. But, they had this guided painting kit. It was on sale for under $10 so I thought, ok. I’m going to try.

I brought it home and realized that the instructions were daunting. But, 2 weeks later, I had finished an adorable likeness of 2 puppies. My husband and son, though still skeptical, told me it wasn’t half bad. Ok, I’ll take it.
The next time I bought a kit, I went a level higher to challenge myself a little more. Now, I’ve almost finished that one and have set a long-term goal of painting a picture for my sister’s new house.

I noticed some other changes too. I have been filling idle time with painting. I also pray while I’m painting and just enjoy talking, inwardly to the Lord. I also haven’t dropped anything in several weeks. I was usually good for 2-3 cups a day, etc. No more dropping. Less type-o’s too.

I’m grateful that the Lord found me a hobby and I am grateful to my mom for pushing through.

Posted in Health, Parkinson's Disease

When Your Diagnosis Becomes Real

Receiving a diagnosis for a disease is a whole lot different from having a doctor tell you that you have strep throat or a sinus infection. With those, an antibiotic has you feeling better within a few day. No, a diagnosis leaves you with that feeling in your stomach (like you just ate too many pancakes). Your mind whirls and you feel flushed. Then, the gears of your brain start immediately switching to combat mode. How can I get out of this? What do I do?

While every diagnosis is uncomfortable, the worst, to me, is receiving a diagnosis of a disease that A.) has no cure and B.) is progressive. For awhile now, I have lived with the knowledge, albeit in the back of my head, that I was diagnosed with Parkinson’s. Because my visible tremors aren’t that bad, I often forgot I was dealing with it at all.

Most days, when pesky symptoms popped up, I blew it off as something entirely unrelated. That all ended yesterday. For the last 2 weeks, I have gotten very little sleep. On average, I’ve been getting 2 to 2-1/2 hours nightly. I sucked it up and plowed through. I pushed myself daily, refusing to nap or even sit. Instead of sleeping, I was constructive, doing things that wouldn’t wake the family or reading up to 3 books a night. The reason for my restless nights was easily explained, I thought. Each night, an hour after I fell asleep, I was awaken by full body, muscle spasms that not only constricted my body, but hurt beyond belief. One night, I even begged God to either manifest a healing in me or take me home. Home as in Heaven. I couldn’t take the pain. I’m not even embarrassed to admit it!

Buster was my rock through it all. When I broke down crying, he must have thought some ‘thing’ was hurting me. He ran literal circles around my body as I lay on the floor. Growling and barking at invisible force that was hurting his mommy, he, too, spent the last couple weeks without sleep. I so love him. But, this isn’t something Buster can chase away. No, it was time to admit that I needed serious help.

I should add that my doctor ordered a battery of tests back in January. I have found every reasonable excuse to not get the tests done. Then, I began to rationalize that some magical blood test held the cypher to my pain. Of course, they didn’t. But, on Thursday of this past week, I got the tests done. Having a lab in her office building allows my doc to get results fast- usually the same day. But, again, I procrastinated until yesterday. I called and was told that yes, she had the results and I needed to speak to her.

Initially, all was good. She called right away. My A1C has dropped to a non-diabetic level. Sweet! My cholesterol was great. Awesome! Then, she asked as she always does, how I felt. I took a deep breath and told her the whole ugly truth. Being that she has a heart of gold, she didn’t say ‘I told you so’ or ‘Duh’ or any thing even close. She simply said, ‘Are you ready for some help?’. Yes, yes I am.

She knew right away that everything I am feeling is PD-related. So, we had to take a step I hadn’t been ready for at this point. I am going to start taking meds specifically for my disease. Am I happy about it? No, no I’m not. Am I scared? Yes, yes I am. Mostly because I know that once you begin a dopamine regime, you’re stuck with it. There’s no turning back. No second thoughts. My body doesn’t do it’s job in the dopamine arena. So, now, it’s official and real to me.

I had to tell my husband, who didn’t take it well. I know he’s worried about the future. So am I. But, the sun still rose this morning. God is still on the throne. He can still manifest a miraculous healing in me. Even if I have to wait for complete healing until He calls me home, I’m holding on to that promise. I will have my weepy days and my pity parties. But, I will take one day at a time.

Posted in Home, Parkinson's Disease, Pets

May’s Firsts in My Year of Firsts

May brought another month of opportunity to try new things. While they aren’t big things whatsoever, they were firsts for me.
A weeknight with no dinner plan presented an opportunity. I searched for a recipe we hadn’t used and decided to make homemade sloppy joe’s. Usually, I’d go with Manwich from the can. But, since I had the ingredients, I went for it. While it didn’t turn out great, it wasn’t awful either. Manwich is still a better option, though. I was missing that vinegar type taste and the off brand ketchup didn’t help matters.

Two firsts involved Buster. Usually my husband & son are in charge of giving Buster a bath. He can be quite a handful and I just honestly assumed it would be too much for me. But, he’d been extra itchy lately & the hubs has been super busy. So, I geared myself up with some grubby clothes and went for it. My youngest son did help by lifting Buster into the tub. That was just a physical impossibility on my own.

However, once the heavy-lifting was done, I was on my own. Surprisingly, I did a great job. I also proved a little something to myself by tackling a project I deemed too hard. But, the second Buster activity did require a partner in crime, per se.

We’ve had awful luck with vets. In fact, they’ve been so off the charts expense that we’ve utilized a local clinic for shots & routine things. But, an acquaintance of my husband’s suggested his dogs’ vet so we went. Many things concerned me. There would most definitely be other animals there. Buster does not play well with others. Plus, any new situation causes him to regress into an animal without any brain. Bottom line: he’s a bit nutty. But, I was armed with my super strong husband, a new harness and some willpower.

We had it well planned out. My husband went in first, Buster-less. With the new harness, a one better suited to my stupid Parkinson’s hands (grr), I hooked up the leash & walked Buster to the grassy area. I love this harness. It’s a God send. We’d outfitted him into it before we loaded him into the truck. Surprisingly, Buster seemed to be really enjoying himself. He wasn’t being choked by the harness because it’s really comfy. He even felt comfortable enough to plop down in the grass & watch the cars drive by.

Inside the vet’s, he was pretty good, too. I warned another Dog Mommy over my shoulder that he was dog aggressive so she’d hang on tight to her beautiful Boxer pup. Regardless, Buster waltzed right by him with barely a bark! He was perfect during the blood work and even fell for Dad’s distraction techniques. Both the ride to & from were generally drama free. I declared the whole day to be miraculous. Long story short, I proved something to myself & Buster did too. We aren’t helpless & we can get things done.

Finally, we began some home remodeling to our ancient home. So far, we have the living room completed. However, I know nothing of remodeling. As a contractor, this is as normal to my husband as brushing his teeth. While there are obviously a ton of things I can’t do due to lack of knowledge in construction, I was able to assist in carpet installation. I was also given the arduous task of pulling up old staples. Wee! So, not fun. I continued this task with breaks, frequently, because my stupid hands won’t cooperate.

The floor work was increased when I stepped in the wrong place & literally, fell through the floor. One leg went into the floor, one was up in a sort of vertical split. I am not built for splits. I picked splinters out of myself for several days. However, it was funny and I convinced the youngest to not YouTube or Snapchat it.

Looking forward to June!

Posted in Health, Home, Parkinson's Disease

My Year of Firsts

I will be 40 this year. I have no idea where the last decade went. It has NOT been an easy decade for sure. So, this year I decided that I would take every opportunity to try new things this year. It’s not a bucket list. It isn’t a wish list either. But, when an opportunity presents itself, I will jump on it. It’s a promise I made to myself.

I’ve been taking stock of things, internally, lately. I figured this would pull me out of my slump, get me moving more, & maybe, just maybe, motivate our youngest to try new things, too. Now, some things might not be big things. In fact, most won’t. I suppose my theory is to just do things. Having two debilitating diseases, one of which is progressive, makes a person re-evaluate a lot of their time and effort. The bottom line is that if my body is going to be tired anyway, I might as well give it a good reason to be tired!

A hinderance for me has always been anxiety. Whether it’s caused by or in addition to, my diseases, the doctors can’t specify. But, I do have issue with crowds, strangers, etc. Wal-Mart is a literal nightmare for me. So, some of my firsts are going to challenge me. I know that. It also takes me twice as long as my husband & son to get somewhere we’re walking to and I am usually exhausted a whole lot quicker. So, the firsts will be a physical challenge too.

So far, I have done some small things. I ate at our local VFW with a crowd of people there. It was a major step for me. However, the people were pleasant, the food was fantastic, & we had a good time. I also tried yoga for the first time. But, I did The Yoga Prayer. Basically, it’s yoga but at times when one would meditate & such, Biblical Scriptures are read along with a Christian prayer. It lasted 45 minutes. It was tasking, difficult, but motivating & I felt accomplished when I’d finished. For a few of the poses, I did have to change a bit. There a just a few things my body can’t physically do.

Win, lose or draw, I hope to accomplish a lot more as the moments arise. If nothing else, I feel like I have a goal for the year. Hopefully, I will have a much fuller list when 1/1/18 arrives!